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Andrew Reid's Journey with Posterior Cortical Atrophy (PCA)
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🛑 What happens when a typical approach is used with someone living with Posterior Cortical Atrophy?
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Posterior cortical atrophy (PCA) means ‘back of the brain shrinkage’. It’s a rare form of dementia caused by damage to cells at the back of the brain, which predominantly affects the processing of visual and spatial information. In this scan, you can see the damage spreading through the brain over time. Eventually, a person’s memory, speech and problem-solving skills will be affected. As time passes, people will need more support in their daily life and help to look after themselves. This often
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🛑 What happens when a typical approach is used with someone living with Posterior Cortical Atrophy? In this moment, Charles describes what it feels like when his brain begins to shut down during a common care interaction: 💬 “My brain was like, I don’t want to do this. It’s scary when it stops.” In Part 3 of this Courageous Conversation, Teepa Snow shows how challenges can occur when someone is unaware of the skill required to truly support this unique situation. 🎁 Watch the full YouTube video
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“Getting a diagnosis helped me in giving me a way forwards.” Steve is living with a rare form of dementia called posterior cortical atrophy, which usually begins by affecting a person’s vision. He reported his vision symptoms to his optometrist, but they found nothing wrong with his eyesight. It took four years from the start of his symptoms before he got his diagnosis – the diagnosis which made things tangible and helped remove anxiety about what was going on. Steve and his wife Aly want people
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Well, I have two twin sisters who were injected with IVF. I have a brother who is now 8 years old, but he has health problems. He has brain atrophy and poor growth. He does not speak and eats nothing but bread. He does not see well. He has cataracts in his eyes and must undergo surgery.My mother suffers from herniated discs in the third, fourth and fifth cervical vertebrae. There is no painkiller for her. She cannot sleep at night because of the excruciating pain. My father is the same.Now I had
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